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WHAT DOES SICKLE CELL CRISIS FEEL LIKE?

        You still read our stories? You're one wise fellow then😏.  One part of sickle cell disease, sicklers hate, re - hate, must - hate and will forever hate is sickle cell crisis. It comes with terrible pains, pains that are meant to be delivered to murderers, not innocent humans. Again, I had a story compilation from three warriors on how sickle cell crisis feels <get your tissues ready> .        Someone came up to me, to describe her crisis experience.... she said,  "Arghh sickle cell crisis!!! You can never get used to it. It felt like someone kept hitting my bones with a hammer, felt like a nail was continually dragged on my bones. Yet, some people, even medical professionals, felt I'm faking it! Sickle cell made me cry to the extent I had no voice to support it."   How sad it is for you to go through this, and medical experts, will accuse you of faking it.       Kevin, a teenage...

WHAT WAS THE IDEA YOU HAD ABOUT SICKLE CELL DISEASE BEFORE NOW?

       You won't believe your ears, when you hear the idea people had about Sickle Cell Disease (SCD). Months back, I sat with people and stirred up conversations on what they think SCD is about...I was left in awe. With OUR SICKLED STORIES, I was able to ask the public what they think SCD was before now, from both SCD warriors and non - warriors. Here are some of the stories....        A warrior stated,   "As a child, I always thought everyone visited the hospital and it was normal to get admitted frequently. Later on, I found out I had Sickle Cell Anaemia and not everyone had it. I was made to feel like it's something I shouldn't let anyone know about and I should be ashamed of...even till this day. I witnessed a lot of stereotypes concerning sickle cell patients, like we are weak, going to die soon, not exactly humans and many more. This made me always lie, anytime I was asked my genotype."      I met a young girl and beauti...

I AM A VOICE FOR SICKLE CELL DISEASE

         Growing up, I thought it was normal for everyone should go to hospital regularly. I found a resting place in hospitals and grew to adapt to the pain of injections. It was at the age of seven or eight, I was able to understand I had Sickle Cell Anaemia. I was convinced by society it was something to hide and be ashamed of.         I hid it for almost all of my teenage life, and I grew to feel inferior. I began to lie about my genotype and run away from conversations involving it. Sickle cell was something to run away from...until one day, I began to see people speak up for sickle cell...and tell others we are normal. They made me feel powerful and equal to others. I was able to get courage to feel like others. Nevertheless, I couldn't speak about it.        Well, this seventeen years old girl of ours(me)...went to a pre-university school. She found herself in the room of lovely girls, ...